Kimberley Jenny, USA

Presentation

In the majority of families, FTD is not inherited. For a portion of people with FTD, it is.  As each individual and family receiving an FTD diagnosis adjusts to a new reality, it is natural to wonder if others close to them may also be at risk of developing FTD.  Because of seeing the impact of the disease on a family member, this is perhaps the most difficult and personal question to ask.  The complex biology of FTD also makes it complicated to answer.  In this session we will introduce FTD genetics and provide information and resources to empower you to ask and understand potential risk, knowing you are not alone.

Bio

Kim joined the Association for Frontotemporal Degeneration as the Manager for Genetic Initiatives in November, 2022. She is a genetic counselor with over 17 years of clinical experience, working with families impacted by pediatric metabolic/neurodegenerative conditions. Kim then expanded upon her expertise while working with highly respected commercial genetic testing laboratories performing variant interpretation, gene curation, and clinical consultation. Kim is now working to support the AFTD community by developing educational resources, engaging with our community, and establishing support groups focused on issues relevant to those impacted by genetic FTD. Through education, advocacy, and research, we hope to improve the lives of individuals and families affected by FTD.